FAMILIESCN2A CONFERENCE

Please join us for our 3rd SCN2A Family & Professional Conference which will be held in Seattle, Washington. This conference is brought to you by The FamilieSCN2A Foundation along with Bernier Lab, University of Washington and Center on Human Development and Disability (CHDD), UW Medical Center.

Register for our 2019 Conference

Register Now

Frequently Asked Questions

The FamilieSCN2A Foundation holds our Family & Professional Conference every 2 years

Agenda & Speakers

The FamilieSCN2A Foundation is currently working on the agenda and presenters and we will provide a final agenda as it becomes finalized. Topics that are being considered for the conference include:

  •  SCN2A 101
  •  Basics of Genetics, what your child's variant means
  •  Clinical Management & Comorbidities of SCN2A Disorders
  •  Pharmacology update on best drugs for SCN2A
  •  Report on centers specializing in SCN2A & other genetic epilepsies
  •  Autism & SCN2A
  •  Therapies that can help your child today
  •  What we have learned from the Simons VIP registry
  •  Natural History Studies
  •  Lab updates from around the world / the SCN2A Landscape
  •  SCN2A Models, mice, iPSCs, organoids
  •  Drug Discovery & Transnational Science - taking what we've learned in Basic Science to treatments
  •  Gene Therapy, understanding the techniques & process behind making this a reality
  •  SCN2A Research Pipeline Report

Scholarship

We've got you covered! Scholarships are available for families with a child diagnosed with SCN2A. A copy of their genetic report must be emailed to info@scn2a.org at the time of the application. Scholarships may cover up to 2 nights North American / 3 nights International in the conference hotel, one family registration fee, and/or flight assistance (up to $200 North American / $500 International families.) Application deadline is April 30, 2019. You will be notified whether your application has been selected for sponsorship between May 1st - May 8th, 2019.

Application for International Families Application for North American Families

Sponsor a Family Scholarship

The FamilieSCN2A Foundation is a registered 501(c)(3) organization and is created by parents of children diagnosed with rare forms of Epilepsy and Autism as a result of a change in the SCN2A gene. Our mission is to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy. An important way we work toward accomplishing our mission is by hosting a biennial Family & Professional Conference which brings together important stakeholders for SCN2A related disorders.
Sponsoship Levels
Your financial support of the FamilieSCN2A Foundation Family Scholarship Fund ensures families from across the globe can come together and meet other families who are facing the same rare struggles. In addition, your financial support provides these families with the opportunity to interact with and be educated by some of the world’s leading SCN2A researchers and clinicians. Choose from one of our four sponsorship levels:

HERO LEVEL: $1,000

  •  Tax deductible donation
  •  Full sponsorship of one Family Scholarship
  •  Recognition as a Hero Level sponsor on our web site and social media

SIDEKICK LEVEL: $500

  •  Tax deductible donation
  •  Partial (1/2) sponsorship of one Family Scholarship
  •  Recognition as a Sidekick Level sponsor on our web site and social media

ADVOCATE LEVEL: $250

  •  Tax deductible donation
  •  Partial (1/4) sponsorship of one Family Scholarship
  •  Recognition as an Advocate Level sponsor on our web site and social media

FRIEND LEVEL: $100

  •  Tax deductible donation
  •  Partial sponsorship of one Family Scholarship
  •  Recognition as a Friend Level sponsor on our web site and social media

To support the Family Scholarship Fund visit: www.scn2a.org and click “Donate”. Donations can also be mailed directly to the foundation at: FamilieSCN2A Foundation, P.O. Box 82, East Longmeadow, MA 01028.

When submitting your donation, please make sure to note you are supporting the Family Scholarship Fund. Questions? Contact Michelle at: michelle.lewis@scn2a.org

Exhibitor

Corporate Exhibitor Opportunities - All exhibitor fees are tax deductible donations

PLATINUM LEVEL $25,000
  •  Acknowledgement on select conference materials as Platinum Level Hero
  •  Recognition on all conference invitations, media releases and electronic newsletters
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Platinum Hero
  •  Naming rights as title Hero for Family & Professional Dinner
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for five attendees
GOLD LEVEL $15,000
  •  Acknowledgement in select conference materials as Gold Level Hero
  •  Recognition on all conference invitations, media releases and electronic newsletters
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Gold Hero
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for four attendees
SILVER LEVEL $10,000
  •  Acknowledgement in select conference materials as Silver Level Hero
  •  Recognition on all conference invitations and electronic newsletters
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Silver Hero
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for three attendees
BRONZE LEVEL $5,000
  •  Acknowledgement in select conference materials as Bronze Level Hero
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Bronze Hero
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for two attendees
FRIEND LEVEL $1,000
  •  Acknowledgment in select conference materials as a Friend Level Hero
  •  Visible signage at event with recognition as Friend Level Hero
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for one attendee
Become an Exhibitor Exhibitor Levels

Register

The price for registration for the 2019 conference will be $175 for families up to 6 participants total. Cost for professionals in the industry is $250 or $300 for professionals participating in the CME course. This price includes entry into all sessions Friday - Sunday, breakfast and lunch on all days, the SCN2A Family & Professional Appreciation Dinner on August 2nd and any organized activities.

Please note: children are not permitted in the conference room, and formal childcare is not included. There will be snacks, drinks and activities in the hospitality room for children with SCN2A and their siblings. All children must be accompanied by a parent or caregiver at all times. Please choose the proper link to apply for a scholarship and note the terms of the application.

Register Now

Hotel Information

The rooms at the Graduate Seattle are ready for a night like you’ve never had before, where little moments of surprise and discovery will meet you down every corridor and around each corner, including Malin + Goetz amenities and complimentary wi-fi. Be prepared to be inspired.

Reservations are to be made by each individual calling the hotel directly at 1.800.899.0251 between the hours of 8 a.m. – 7 p.m. (PST) Monday through Friday and 10 a.m. – 4p.m. (PST) on Saturday and Sunday, or by faxing reservations to 1.206.545.2103, or emailing requests to reservations@hoteldeca.com. To guarantee rate and room type, please ensure the name of the group, arrival date, and any other information needed is given at the time of reservation.

Your Group Name is SCN2A Conference (This is the name that an attendee must ask for when calling to make a reservation)
The first date of arrival is: 07/31/2019
The last date of departure is: 08/04/2019
The group rate of $189 is valid for 3 days pre / post contracted dates, based on hotel availability (at the time of reservation).

Guests have until 7/2/2019 to make reservations for this group.

Online bookings are available as well. Please visit www.GraduateHotels.com/Seattle

   1. Go to the "Book Now" tab at the top of your screen
   2. Enter the dates you are looking to book
   3. Under the “Special Codes” tab
   4. Enter your “Group Code”: 190801FAMI

You can also use this direct link:
Book Now

NOTE: Anyone who is in need of an ADA room should contact the hotel directly.

  •  Graduate Seattle
  •  507 Brooklyn Avenue N.E., Seattle, WA 98105, United States
  •  Group Discount Rate $189.00 + tax = $218.49 or Junior Suites (if requested) $219.00 + tax
  •  Reservation Cutoff Date: 7/2/2019
  •  Call (206) 634-2000

Things to Do

For additional information on Seattle please visit: www.visitseattle.org.

  •  Seattle Airport to Hotel is approx. 20 miles
  •  Seattle Children’s Hospital is approx. 2 miles from the Graduate Hotel
  •  Approx. 6 miles to the Space Needle from the Graduate Hotel
  •  Woodland Park Zoo
  •  Burke Museum of Natural History & Culture
  •  Henry Art Gallery
  •  University District Farmers Market
  •  Seattle Japanese Garden
  •  Theo Chocolate Factory
  •  Seattle Underground Tour
  •  Seattle Aquarium
  •  Seattle Art Museum
  •  Pioneer Square
Find More Things To Do

Past Conferences

Take a look at our list of past conferences. The FamilieSCN2A Foundation holds our Family & Professional Conference every 2 years.

  •  1st Conference was held in Chicago, IL at Lurie Children’s Hospital in 2016
  •  2nd Conference was held in Wilmington, Delaware at Nemours Alfred I. duPont Hospital for Children
Watch Videos

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!