AES 2023

FamilieSCN2A Foundation is representing the SCN2A community at AES for the 8th year in a row!! We are proud to announce 2 poster presentations of the pre-published Clinical Trial Readiness Study data. Stop by our booth to learn about our NEW grant opportunity and meet our team. Families: Please share this with your neurology team. We love to speak with clinicians who work with SCN2A-related disorders (SRDs).

Ways To Contribute

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.


FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.


Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with iGive, an automated program that donate a portion of online sales to charity.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!