Hi, I'm Oscar.

Oscar is very expressive: he’s never short on smiles that can light up a room.

Oscar is a happy 6-year-old. His first observed seizure was seen the morning after he was born, and after nearly three months split between NICUs at two hospitals he was diagnosed with an SCN2A disorder — the primary source of his developmental delay and seizures, which peaked around 100 per day. Though non-verbal, Oscar is very expressive: he’s never short on smiles that can light up a room and has been working hard at school to use a communication device. Oscar has spastic tetraplegia and uses a wheelchair to go on adventures, but he also loves snuggling and spending time in warm pools and baths. He gets his nutrition via his g-tube, but has become a lollipop connoisseur.

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