Hi, I'm Rylee.

Rylee loves cuddling, bubbles, miss Rachel, and toys that make noise and light up.

Rylee is a twin of her brother Aiden, by the time she was 6 months old I knew there was something going on. From there I have spent roughly 2 years, fighting for her symptoms to make any kind of sense. After many "we wont know till shes older" answers, I finally got her into genetic testing, along with her sedated MRI. Rylee just recently had another Sedated MRI a few months ago as well. Finally in September we got her genetics results back confirming she has SCN2A, loss of function. Rylee is my amazing, sweet, gorgeous, strong wild child.