Hi, I'm Taylor.

Taylor's favorite toy since he was a baby is a dancing Santa that sings Holly Holly Christmas.

Taylor's birth and early days were normal. At about 4 months I sensed something was not right (he is my 4th). He quit sleeping and was not meeting any milestones. His 1st seizure was at 13 months. It took quite awhile to get the seizures under control on medications. Nobody could give us any answers for what was happening to him.

Finally, we paid for genetic testing and he was diagnosed with both SCN2A and SCN8A genetic mutations. I did a lot of searching but felt very lost.

I would describe Taylor as a 110 pound 2 year old. That is pretty much where he is verbally, mentally, physically and behaviorally. He is in a special needs 4th grade class and has a one-on- one aide. We are currently trying to get him diagnosed with autism so that he can get the services he needs for that.

I cling to God and prayer. I feel everyday with him is a gift. I was told he had a short life expectancy and that is so scary. Everyday can present something new and unknown with him. I hope to learn more about his condition and become more involved in research. Taylor is my biggest challenge and my greatest joy. The time I spend laughing and playing with him fills my heart. My family embraces him and loves him. He returns that love to us tenfold every day.

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