Welcome to FamilieSCN2A

We are an organization created by parents of children diagnosed with rare forms of Epilepsy and Autism as a result of a change in the SCN2A gene.

Our vision is to find effective treatments and a cure for SCN2A disorders.

Our mission is to improve the lives of those affected by SCN2A related disorders through clinical research, effective treatments, public awareness, early detection, patient advocacy, and family support.

We are a registered 501(c)(3) organization run entirely by parent volunteers.

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Do you have a special talent or skill you would like to share with the FamilieSCN2A Foundation? Are you willing to donate your time toward supporting our mission and vision? If so, volunteering is a great way to get involved.

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 Our goal is to find a cure!
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 Newly Diagnosed?

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!

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Ways To Contribute

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.


FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.


Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with Amazon Smiles and iGive, automated programs that donate a portion of online sales to charity.


Set up your own ‘First Giving’ page through the foundation to collect online donations.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Connect / Support / Research

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!